This post, that post. Next post please

Well I can only offer my sincerest apologies for there being no painting a the end of my last post, that was the problem of living in the middle of the (wait for it) Nullabor, yeah I thought not you have no idea what the fuck that is and neither did I, until I ended up working there for almost three weeks (by far my shortest tenure in a paid position) apparently it's a rather daunting stretch of desert/pain in my arse/highway that is ever so difficult to cross unless like many a modern traveller you have an automobile then it just becomes a game of when your gonna pay the most for fuel and how much are they gonna screw you over? Turns out it was the place where I worked that was the most expensive for pretty much everything, thank's in part to one of the managers saying if there are two prices re price everything the higher one even if it's wrong what a twat.

Anyway let's get down to business that's why your here after all. Well what started out as a rather rage filled post aimed towards my previous landlord (a fifty something ex con with door issues), my now ex-employers (I am ever so glad to have escaped that awful place, overtly patronising management one of whom I can only assume could be categorised on the autism scale as I not once witnessed him have a conversation with anyone he just talked at people anyway this is becoming a rather long bracketed part of the post so I'll end this here) and I was sure there was another thing that was filling my mind, body and soul with rage but seeing as I've forgotten it can't have been all that important. 

After driving well over a mile 2000km (and whatever that may be in miles*) from the isolated prison known to the world as Border Village WA/SA even google doesn't want you to find it. Some recently arrived inmates told us of a place called Iron Knob so I just had to see that road sign and not only did I see it but spent the night there next on the list is Fanny Bay but that was a rather large detour and we were on a tight schedule. On this rather epic journey we passed though the town where some films were made things like The Adventures of Priscilla, Queen of the Desert and I was supposed to be able to see the space ship that crashed in Pitch Black but that was nowhere to been seen (probably half inched by some scoundrels, no doubt)

And so after a few days of driving, the car overheating at one point cos I thought that so long as the thingy was in the "normal" range everything was fine turns out that's not the case when your pushing the car to it's limits for most of the day (Betty, that's the car btw won't even make 170km so that's less than 100 miles an hour) so she needed a drink n a cool down it is a good job I decided to stop there anyway. Oh and just in case you were wondering yes I have seen a kangaroo I've seen lots and a few wombats, all the latter were dead and probably 90% of the former too. Yeah there's not much alive round these parts not even the owl that unceremoniously flew in to the car in the night although I did miss a few lizards that were warming themselves on the tarmac and after a short detour we saw a few whales off the coast it's the end of the breeding or calfing season (when they give birth) but some must be lazy fuckers tired new mothers as they were still knocking about, quite a lovely experience really although they didn't "preform" as much as some would like but that's nature for ya (I have another brilliant tragic nature story I'll retell next time, with pictures). So after all that malarkey we arrived in our latest and (so far) greatest home in Australia and that is Alice Springs not too big n spread out, a la Perth and not just the complete arse end middle of nowhere. With sponsorship on the horizon it may be home for some time to come but as soon as I find a job n get a routine I'm sure it will all slot in to place. 

Oh and this week I will definitely contact the local hospital as I apparently need my HSBC1 checking regular like now I'm "on the threshold" (anyone who knows the real blood sugar test name please let me know in the comments section) there is no dedicated CF unit I already checked that so will just have to wing it, not that I'm not used to that quite a bit of my existence up until recently has been winged, wunged? I dunno what the past tense for winging it is so I'll just leave it at that.

Take it easy, I know I fucking do and don't be too hard on yourself I know I fucking am.

* it's about 1346 miles

Getting on with getting on

Feels like quite a few weeks seem to have past since I last sat down to write this. It's not that I don't love you all........... honest I do................. really it's just that what with early starts, planning road trips, searching for a van, starting my latest and largest tattoo project (this is what I am excited the most about) I've started drawing again and I don't know why I stop doing something I get so much enjoyment from.

Well I (and most other staff) were right about dumb & dumber the bar staff they are awful one is just new to bar work but the other one (the one who ran a bar (on Facebook) is arrogant, annoying, manipulative and something else but she doesn't really speak to me as there is nothing she can use me for, she has on the other hand got Mark running round doing little jobs for her, it's a bit pathetic and none of my business but I told him I'll throw that dammed coffee cup in the fire if he goes back to the house to get her a drink whilst she's working. She's not done any of us a favour so I have no idea why he's doing her some. Don't get me started on what happened on a skimpy night the other week and another night we had just started playing pool and after putting money is the jukebox she went n turned the fucker off she is also not against potting peoples balls whilst they are playing and taking their drinks off them. I think that she might just get her lips kicked off before her time here is over.

My health is doing well, I've started doing some regular exercise, do nebs, and take most of the medication I'm supposed to. I must admit I go through phases of looking after myself well and then drop off after a few weeks/months never years not yet managed to look after myself well for that long consistently but I do hope that this is the start of a good year. I did start taking most of my meds more after we set off in Dec but since being in Australia and having some kind of routine even when I had no job there was a routine and having my meds was part of that and then since having a job doing my nebs and starting some exercise has been part of that routine and I do feel better for it even though the rough weather we've been having here has made my chest a bit more productive but I noticed when travelling that after heavy rain this happens. I never noticed that back home as it rains quite a lot, that coupled with not actually being the most compliant of patients means that getting away form home has given me the chance to notice this and when I get back home I don't know how I'm going to manage that. Maybe being more compliant will be enough and the environmental factors won't be that much of an issue. Guess we'll only find that out when I do return for good.

I think just one day off a week might be a bit too much but it's not forever, if it was then I would get run down eventually but not having to commute is a bonus so its not like having a real job yet even though it is a shit load of hours.

This weeks photos are a few of the drawings I've done the past week or so, enjoy. I hope to have a few more of out and about next time as I have a trip to the Pinnacles in mind and as soon as my licence arrives I'll be taking a trip down there with Rahrah. A nice afternoon with a picnic and some good weather would be nice as almost every time we plan to do something the clouds descend and we have a good time but the photo opportunities are limited.

Jellyfish

Coral and Seahorse

Cabin Fever (or how I got a job in the sticks and had to live with it)

My first pay cheque made the 99 almost 100 hours worth it. As I sit here with a nebuliser mask on (old school compressor) writing this and thinking how I am going to escape this place for 48 solid hours tomorrow. Tthe only reason for that is that I have a hospital appointment back in Perth and can't be fobbed off with a local "doctor".

My iNeb has decided not to charge any more I can't get the fucking thing working for love nor money so that's when I got the idea to go back to Perth on my almost day off and well wouldn't you know it people seemed to be conspiring against me getting away for a few measly hours to sort this thing out and I am now using a compressor that is easily older than Justin Bieber and takes forever and a day to finish my TOBI but it's better than nowt.

Well this is the view from the social hub of Cataby pub well it's one of them there are 360 degrees of view but I doubt you want to see the toilets, wash room or a dusty carpark.

And now a view of the pub, it'd be a shame to not show you this and it's not a great snap I was quite far away but I'll get a new one and update ASAP soon.........ish.

Work is pretty much all there is to do around here so glad of the pub at the end of the site, I don't dirnk any more but they have pool and darts and I like socialising even if it with bladdered miners when they stop making sense I just come home which is no longer an open plan tin box but a real bricks and mortar building with a living room, bedroom and bathroom it feels almost civilised apart from the fact that it's attached to work so I'm, as one cook called it, "on call" unless I'm out for a walk or down the pub. People seem to do a 3month stint here to get their regional work done. That means you qualify for a second year working holiday visa which is nice to get it out of the way early and not be scrabbling around for anything and everything with our last three months to go. This means that my new 'family' consist of Cookie (she's the cook), Mark (he's a labourer on the farm most days), Dawn (front counter/ part time drama queen) so you'll probably read a bit about them over the next few months it's a pity the current bar maids are leaving as they are a great laugh. There has been a lot of chitter chatter surrounding the new bar staff, they arrived yesterday and I'm not sure how good their English is but they may struggle in a loud, busy bar environment. Apparently one has managed a bar and I'm not being funny but I don't think a bar on Facebook counts as "managing" a bar they were watching everything in awe even asking how to measure a shot of spirits from an optics bottle what the fuck. I mean there's working in a bar and not knowing how to change a barrel but to not know how that works after watching someone do it is dim in the Tim Nice But Dimmest of ways. We shall see how they fare over the next few days of supervision by the two that are already here, real bar maids I might add but they don't seem to think they'll last.

What else?....................... Oh yeah "skimpy" night I forget if I mentioned it's not a glamorous or highly entertaining night down the pub. It is basically a barmaid wearing very little who collects glasses and fucks up the takings cos she doesn't know how much anything costs. But it keeps the miners happy which is all the boss wants to do isn't it. Apparently the one on last week does do a "show" but I was far too knackered after a half five start to go watch any of that crap.

I'm quite sure there was more to report but.... Wait yep yep there was a few big spiders near the pub the other day (the first I've seen out here) I got a few photos then took a few of the surroundings I'll try n get an object near them next time don't think the photos show a good sense of scale.

It's one of two that seem pretty established until Mark (who insists on calling me 'Son' all the time) jumped or fell on to the webs. I wasn't there I just heard about it.

Anyway gonna try n enjoy what I hope is the rest of the day off.

See you after the break

Mr. Valentino (or How I stopped hating and learned to love thy neighbour)

Right so after that little outburst the other day I have had a few more "normal" encounters with staff, a laid back self proclaimed "physio-terrorist" who doesn't like airway clearance who took me on a not just a wander but all they way down stairs to the gym far better than treadmilling it for 15 mins I'll tell ya that.

Well time here on what has been cheerfully #CellBlockG54 isn't as gruelling as I initially feared it was going to be. Much of the staff are pleasant enough but quite a few have either no social skills or it's just a terrible bedside manner/patient interaction, no conversation, no interest like I said it may just be the way most wards work but some of them are nice enough and have a little chitchat which makes the day a little more bearable.

In other news I did FINALLY get that car much to my utterly indescribable sense of being done over good n proper. Let's just leave it that we wasted 200 quid to drive less than 6 miles away and have the car blow up on us, the guy didn't actually live at the house we picked the car up from and neglected to pick the phone up again. It's just been left where it died on the highway motorway.

JOB HUNT update, after what I thought was a well executed interview at a famous fried chicken establishment they failed to call to inform me of my success on getting the position. Taking the initiative I called them everyday only to be fobbed off by some lackey that the managers were still "processing applications" this so called manager had intimated to RahRah that there wasn't many applicants anyway four days after we were told we would hear about our success or failure we got not a phone call but an email a bit cheeky I thought, they must've have had a slew of applicants far more suitable for the positions on offer. I've also been rejected by the home of the Big Mac, yes that's right a former crew member has not been welcomed back to the fold McFamily my arse.

Almost forgot the title of this post is the guy who is in the room next door Mr. Valentino lots of old guys keep visiting him and there's lots of loud and sometime aggressive Italian arguments conversations, I do hope no one comes to try and "whack" this old gent as it'd be terribly traumatising if something like that were to happen. I think film has many a thing to answer for when it comes to my thought processes. Anyway he's ill and so am I so can't really hold it against him if people are winding him up in Italian (I'm just guessing there as my understanding of Italian leave much to be desired) why else would there be the raised voices?

Back on to frantic application filling in and signing up to employment agencies, still no word on where my driving licence is my mate who sent it has been incommunicado since he said he'd sent it bit of a worry as that was over two weeks ago and there were some iNeb disks in there. People with iNebs will be aware that these disks are needed to use the device I'm not entirely sure as to why Phillips decided this regulating of doses was a requirement of the device but it is so there ya go.

So still immobile, unemployed and not 100% in the health department but still winding up staff and enjoying it the best I can.

Thought I'd be escaping this place today or tomorrow but some kidney functions have been elevated or some other shit so they want to repeat that and then with living pretty far away (only on public transport I might add) they'd prefer to keep me in but they're gonna test my iv making skills later today  just in case.

So that's me signing off for a little while far more regular updates can be seen on twitter by searching for #CellBlockG54 I'm quite confident that I am the only person using that particular hashtag and it will never be trending. 

Is it just me?

WARNING THIS IS A RANTY TO FUCK POST

Right so I am on #CellBlockG54 ward G54 in Perth and I'm finding things a little difficult. I knew things would be different but I would expect to be able to speak to staff and then them understand me.

This, it appears is far too much to ask for from an English speaking country. They are either acting or I have no idea how these people became nurses (the majority of them NOT all of them) there are several things that have wound me up the past few days of being here and I'm not sure if it is them or just me.

Three incidents leap to mind right now and I shall recount them here and you can decide for yourself if it's them or me.

Incident One.

Set the Scene:- It's around 9pm and the night nurse has come in to get my evening meds, she asks
"Do you need creon?"
"No, I have them when I eat" My reply
"So you want some food?"
"No"
"So your having some creon now then?"
"No I only have creon when I have something to eat"
"Oh so you want some food now?"

Seriously it felt like this went on forever but seeing as I am out of that particular time loop it didn't but it wasn't the last bout of weirdness.

Incident Two.

Setting the Scene:- Again in the evening (it might be a night nurse thing now I think about it) again around evening drug time.

"So your due a Hyper Tonic Saline (HTS) now?" I had just started this treatment that afternoon and told the physio due to it making my throat irritated I would work up to three times a day. So I answered
"No, I've had it today"
"It's written up for three times a day" I then went on to explain what I had agreed with the physio that afternoon.
"So are you having this HTS now or a little later?" It's the creon debacle all over again in a different guise.
"No I'm not I just told you what I have agreed with Jamie" Jamie is the physio in question in case you were wondering.
"Well I'll have to get the doctors to change that"
"Fine but they'll only have to change it back in a few days when I am doing it three times a day" This sentence was met with an odd look that made me think staff aren't used to patients refusing treatment or questioning "What is Written".
"Just write down that I've refused treatment" I said this and she did look ever so surprised like it was a secret code only a few select individuals know about.
"Yes I suppose I will" She smiled and left me too it.

Incident Three:-

The Scene, as if you couldn't guess the theme by now was again late in the evening. This evening I was to resume PEG feeding, I have a button and in the afternoon explained what adaptor I needed to connect the giving set to my button. Apart from the "feed" not being feed but a few bottles of supplements thrown in a bag and set up didn't bother me much. Again I had to explain what I needed and she toddled off came back and informed me that there were none in the entire hospital not a one. So she asked......

"Do you do this at home?"
"Sometimes..."
"Well tomorrow can maybe you go home and get some of them?"
"erm...... no I'm not from here and whilst travelling I haven't been feeding"
"Why don't you carry these things with you?" As she said this I really did think she was joking as she knew I'd been travelling, we'd spoke about it the night before, but as I turned to her the look on her face was deadpan serious.
"Well whilst I've been travelling round South East Asia I haven't really been feeding as I cant carry the pump, the giving sets, the feed, along with all my other medication" Just as seriously as I was getting rather vexed at this type of thing happening more often. So she left me alone for a while then when putting up my i.v's for the night she asked.
"Do you drink? Like drink water?" Deadly fucking serious, I kid you not do I drink water? What the fuck kind of question is that followed by
"Do you eat?" Twenty minutes before she asked me that she'd brought me a banana what did she think I was going to do with that?
"Yeah I drink water" and just held up the as yet uneaten banana shook it and nodded my head toward it knowingly, she didn't say anything else and left the room.

and that my dear friends is just three of the things, like I said to begin with talking to some of the nursing staff is just plain difficult. Don't ask me if I want something if it's actually something you want. This was a pillow to prop my arm on whilst she changed the dressing on my PICC line I'm capable of keeping my arm straight whilst you put a new dressing on, You want my arm on a pillow so just ask that.
As the title of the post suggest's I'm not all together sure if it's just me or it is them. I'll keep an eye on it and mention any other battle of words later on.

Time to rest up, get better and join the workforce.

Peace V 

(I'd do two fingers but a V will just have to do)

Job Hunt, Hospital trips & Mobility

Firstly I must apologise for not appearing to be as committed as I made out in my last post, the course of oral antibiotics hasn't worked according to plan and that coupled with the furious dash to secure employment has kept one rather tired of late but I am pleased to report that after one interview I feel I might be gainfully employed by next week.

The job in question is with a well  known fried chicken eatery, which I'll admit isn't what I was hoping for but "needs must" as the saying goes. I didn't tell them that I do have a planned admission but I didn't want to seem cocky by presuming that I have the job in the interview. So that's the other big thing this week I will be admitted to hospital no CF only ward but to the chest ward.

Wasn't overly bothered about this until the CF nurse John said over the phone that I'd be having a PICC line, now I've always associated these being used when people are really quite poorly indeed, with terrible access and seeing as I have had a port for some good few years now my veins are back to being the envy of any heavy intravenous drug user. My port was removed back in December after it became infected (awful feeling I must say but only for a few hours after it had been used for some treatment) so a PICC line will be just another experience. I must admit I really enjoyed watching having my port out, apart from the pressing of my neck as they were actually pulling the catheter out other than that it was all hunky-dory and did I mention terribly interesting.

So as far as I can tell and from the brief tour John gave us the ward environment is similar to home, own room, bathroom, TV, fridge all necessary (apart from the TV) to minimise cross infection one of my pet hates/issues but that's another story if they have the Wi-Fi then that'll be a god send as using ones phone isn't the best of solutions for surfing this vast cyberspace that seems to all be contained in a device that fits in my pocket, amazing really but not the best.

In other news the car I "won" on that internet auction site and was ever so infuriated when the seller failed to contact me has amazingly  been in contact! I can collect my vehicle on Tuesday. A bit of a piss take and I did get all excited as I read the message waiting for the doc at clinic but I'm reserving excitement until I have the keys and I'm driving away laughing maniacally into the night, it'll probably be afternoon but that doesn't sound as dramatic now does it. Diving away laughing maniacally as the car is worth a pretty penny, well it will be once the few things that are not broken but not working well are fixed. I met a mechanic the other day so I do hope he'll do me a favour n quote cheap for the work but who needs power steering anyway? I am ever so excited to be mobile again, the public transport round here is good-ish but so fucking expensive and I suppose petrol isn't that cheap but still cheaper than home and a weird thing they just whack an extra 10-15 cents on the price just for Easter weekend? seems mad to me but they do it all the time apparently. Just another local/national thing I'll have to get used to.

So I'll sign off with yet another apology that's what I seem to do a heck of a lot and hope you are all doing well and if your not then I trust you are heading in the right direction. 

Regular Posts

Suppose I should start with I got my Visa in time! ! ! less than 24 hours before we were due to fly the Australian immigration people kindly granted my application for a Working Holiday Visa so.......  Fan-fucking-tastic! *edited in after 1st posting* don't think I needed to tell you that but I had forgotten that I hadn't posted a congratulatory post for myself.

Ok so it has been over a week since I last got down to posting and I did say that I was going to take this blogging thing a little more seriously so I will be posting a regular update/post/whatever the fuck you call it every Friday (Australia time) not sure what time on a Friday as I do hope to be working soon.

Well as you may have gathered we made it to Perth (not the one in Scotland) and after finding a place to live, filed for tax numbers, applied for Medicare and settled in a little, the great Australian job hunt began. With me not having been particularly active in the job market for a number of years I do hope that I can find something. The applications and phone calls are fast and furious along side this finding some kind of transport is kind of essential as public transport is pricey. 

I will now have a mini rant about a car I successfully won on a popular auction site. Two whole days ago I won a suitable vehicle on said site and immediately contacted the seller with my details so we could arrange pick up of the car and............ nothing, not a sausage I feel the guy is ducking because the car has a book value of around AU$1700 and I won for the princely sum of AU$310. This I attest is the reason I have been  ignored by the seller who is no stranger to selling as the car has been reposted due to an out of state buyer. I am no out of state buyer I am very clearly instate (and told him so before I even won). Anyway that's not as heated as I might have been but there is nothing I can do about it so mini rant over.

Last week also saw me visiting a CF clinic out here. I was told a couple of doc's from the UK were there and were very interested in knowing where I was from (must be a bit slow round 'ere I think as I'm not that interesting) anyway I saw the usual odd n bods physio, dietitian, nurse, and a doc from the UK I did recognise her but not the name I'm crap with names I was given some extra antibiotics and after being kept waiting for a standard amount of time, for a clinic appointment I was told I didn't need any iv's just yet and so I toddled off all in all 5 fucking hours was spent getting to, from and attending clinic *I NEED A CAR* 

The dietitian was most surprising I guess as I have never really had a great weight, its low I know that but he was like "you are severely underweight and you cant afford to lose any more kgs" he saw the look on my face, I was not impressed as I had lost 2kg but I know that I am not dangerously under weight although he did have a couple of students in and might have been trying to emphasise a point or something for their benefit, cos it definitely wasn't for mine. I'll ask him next week as that is when I have to return to see if these antibiotics have made a difference in my LF.

So I'm still thinking about a little bio post with a little history my story if you will although I must make it clear that I am not my history it is just a series of events that has led me to be who I am now and often the story changes depending on what I may want to emphasise but that's the nature of stories all that matters is who I am now and while undoubtedly influenced by my past I am capable of change and able to shape who I am now in to the person I most want to be.

Right well seeing as my TFN (Tax File Number) arrived yesterday its time to go get a bank account so that when I do finally find employment I can be paid in cash not in buttons or bits of string.

Enjoy the weekend and coming week! 

Led a merry dance...... Best thing to happen

Well after Jack leading me to believe that we had employment here in Labuan, turns out we don't some "help" is on it's way here but they have yet to turn up and I'm pretty sure that some of this help was the help that let him down a few months ago. Well you can't should't trust a lot of people based on what they say to you.

So what this means is that after yet another let down here in South East Asia we're heading to Australia the land of big earnings (well that's what quite a few people have told me) only se7en days now and let the job hunting begin. With no real trade and not being the most physically fit person I don't think it's going to be as easy as many other people find it. Lots of people have had demanding farm jobs which I guess are very physically draining. So I'm looking at almost any other kind of job, actually looking at getting a forklift licence and working in warehouses there seems to be quite a few positions going for that kind of work. It's something different and while I'm sure the inside of a warehouse won't change day by day the job won't be boring for quite some time as it'll all be new to me. Means to an end, means to an end. Quite what that end is I'm not 100% sure but one thing I am sure of is that many ends require cold hard cash and that has to be earned.

So that's the imminent plan we've got a place to stay for a few days once we arrive thanks to that great website couchsurfing. Then it's arrange bank accounts, tax numbers, medicare, ect. All the really boring stuff that just needs to be done after that we can get to exploring a little bit of Perth (that's where were headed first) the itinerary hasn't been finalised but that's what makes it all so exciting, the only certainties are that we will be saving for a camper van so that our travels are not restricted to bus routes as we like to find our own way.

One piece of advice if you ever, ever stay in a place that asks you to take your shoes off at the door (there are many of them out here) TAKE THEM WITH YOU, do not leave them in the rack as I did and have done in many other places but never with my FiveFingers. I thought his place would be safe as not many people have been coming and going but two days ago when I went to put my shoes on the rack was empty and the only person who had left that morning was a Belgian! but really why steal shoes? I'll admit that they are great shoes, a Pair of these set me back a fair few pennies and I was quite angry at the time but can't really hold on to that it's not healthy, not at all. If he didn't have pretty much the same size feet as me they'll be uncomfortable as hell that'll teach learn him a lesson (yes I'm aware it should be teach). Right I'll stop ranting like a drivelling loon, I probably could've gone on much more had I written this on the day as my facebook and twitter feeds will attest to #internationalmanhunt might not have been a wise hashtag but I'm done with it now, I'm over it, can you tell?

So that's that really go back to mainland Borneo today, head back to KL on Thursday then see a few things round there we have yet to visit despite spending quite a lot of time there the past few months and the final flight for awhile this year is, as mentioned a week from today is to Perth. Might even get to squeeze in some sea walking before Thursday as I'm pretty sure SCUBA is out of the question with the coughing that happens occasionally, especially after spending time in air con rooms.

Even managed to get a few links in this post. If you've read any of our previous exploits then you'll know I'm not totally new to this blogging game but by no means am I an expert or even intermediate.

So as the title of this particular set of words suggests a merry dance was probably the best thing to happen to us as it means we are now on our way to pastures new and not hanging around waiting for a job that never was.